Time stands still. The household is grappling with sudden knowledge of a member facing chronic kidney disease. In time things will change. It will seem like a subtle change, but a discerning eye will notice the dent, the worry in the tired eyes and the face wearing a new paint. Without so much happening one cannot pick up the thread of life and move on.
In the latest book, Dr Mohammad Akmal and I have traced the historic perspective on the disease. Some remarkable people showed great knowledge, developing an influence on the mind for management of the disease. Like the family in Italy during World War II or the family with two members on dialysis at the same time or generations of a family with polycystic kidney disease. They somehow seemed very evolved in their health care as if they knew a lot more and were fully equipped.
All these stories come against the backdrop of the early Roman era where a roman bath helped in removing toxins when kidneys were diseased. Then came the revolutionary kidney transplant that somehow changed fate of millions. Who was that brave young man who lay on the table to have his kidney removed? Or how did he possess so much inner courage?
But considering this great early progress and advancement in diagnostics, medications and treatment approaches, one can still see that void; feel the silence as there’s not much change in how this disease is perceived. Same emotions. The shock, fear of death, closed door conversations, embarrassment and such decrepit feelings. World needs to change, come to terms that globally people will be demolished due to burden of disease. CKD is a non-communicable disease and currently the 9th cause of death worldwide. It is notoriously rising in popularity. World needs to make huge corrections to retrace so many developments in farming in water conservation, air pollution and general food habits of people.
Who Lives, Who Dies With Kidney Disease will open many minds to approach people with disease with love and compassion and show them they are important to the world. It’s not always a simple kidney failure. So many rarest of diseases are seen as impacting the kidneys. There’s a struggle to find a donor.
Amidst all this people are waking up to stand for change. Let’s be that change.